One Family’s SANFILIPPO Story…

…but the reality for every family living with Sanfilippo Syndrome. Watch this video to learn why we exist, and why we need your help.

Learn More About Sanfilippo Syndrome
Watch the video about one family's fight to cure Sanfilippo Syndrome

Meet Our Sanfilippo Kids and Their Families

Cure Sanfilippo is powered by families. Our success is for and because of them. Hear their stories and you’ll understand why we fight so hard to do what we do.

Our Fundraising Goal

Our goal is to raise $2,000,000 in 2019. But we need your help to get there.

Learn Why We Raise Money
$543,000 raised
Fundraising goal for fight to cure Sanfilippo Syndrome
Donate Now

Progressing research to cure Sanfilippo Syndrome

Curing Sanfilippo Syndrome is our ultimate goal, but we also want to influence the road to get there. With a 360-degree view, the Foundation funds extensive research into multiple avenues for a treatment/cure, as well as spearheads, supports, and funds initiatives that provide valuable, disease-specific and patient-preference information.

See What We’re Funding

Our Mission

To advocate for and fund research directed towards a cure and treatment options for patients with Sanfilippo Syndrome.

Learn More About What We Do

Cure Sanfilippo Foundation

501c3 non-profit
(Tax ID: 46-4322131)

curesff@gmail.com

P.O. Box 6901
Columbia, SC 29260

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